Mission

Who we are

Our collaboration with UICC

What we do

President's Reports

Governance

Board of Directors

Working Groups

Minutes of Meeting/Conference calls

INTERNATIONAL CANCER INFORMATION SERVICES GROUP

BOARD OF DIRECTORS

Burlington Hotel, Dublin, Ireland
Minutes of meeting
November 19, 2004, 11:00-5:00PM
www.icisg.org

Present

Doreen Akkerman
Mary Anne Bright
Catherine Dickens
Cora Honing (morning)
Philippe Mourouga
Marion Morra
Monika Preszly
Chris Thomsen
Anne Vézina

Guest

Nancy Lins (morning)

Enclosures

Minutes of conference call October 1, 2004

Actions arising from the meeting:

• Catherine will send a copy of the signed MOU between ICISG and UICC to each member
• Catherine will contact Janice Blondeau (UICC Communications Director) to introduce ICISG.
• Members will start preparing objectives, key points and suggested speakers for their respective presentations to distribute to the rest of the Board, prior to the next conference call February 16, 2006.
• Anne will send the UICC definitions for plenary, symposia, panels, workshops etc..
• Anne will send an email to Jerry Mayburn (UICC conference planning committee) to confirm the pre-conference course on Saturday July 8, 2006.
• Each member will forward their UICC 2004 presentation for posting on the web.
• Anne will inquire re hosting of a quickplace to facilitate exchange on presentations, otherwise Mary Anne will look into hosting at NCI.
• Anne will create a new page on the web to outline ICISG collaboration with UICC.
• Anne will send possible dates for the in-person meeting during the summer.

Next conference call

February 16, 2005 8AM (EST)

MEETING

1.0 Opening remarks
Anne welcomed Board members and introduced Dr Philippe Mourouga from the Ligue nationale contre le cancer. She thanked Catherine for her outstanding leadership in the past 3 years, and expressed her appreciation for the commitment of the new board of directors.

Board members recognized the important contribution by Irene Miller who has been providing administration support for the board of directors since 2001 and developed the ICISG website.

2.0 Review of the agenda, approval of minutes
Anne reviewed the agenda and indicated that the meeting would also include a working session after lunch, for those available to attend. She confirmed that Nancy Lins and possibly Isabel Mortara, would be joining the meeting during the morning.

The minutes of the last conference call held on October 1, 2004 were approved as distributed.

3.0 Governance
Anne announced that 2 nominations had been received the position of ICISG vice-president and gave a brief overview of the vice-president’s role. She thanked the nominees and handed over the election process to Catherine, who collected the ballots. Catherine confirmed the appointment and, together with all present, congratulated Chris Thomsen as the new ICISG Vice-President.

4.0 Role of Board members and proposed plan for 2004-07
Anne acknowledged that, while board members have demanding jobs within their organization, ICISG Board members are expected to:

• Attend conference calls and in person meetings (as often as possible)
• Participate in the implementation of ICISG initiatives and activities
• Assist in helping other countries start a CIS, sharing of resources
• Be familiar with the ICISG website, and sending suggestions for improvement.
• Reply to email correspondence and contribute to the listserv

Anne presented the overall objectives for 2004-07 and board members volunteered for the following activities:

Proposed Activities 2004-07

ICISG Governance, relationship with UICC Anne, Chris
Secretariat and website Irene

Membership, listserv and Communications (newsletter, testimonials) Chris, Catherine, Mary Anne

ICISG Faculty and courses Marion, Doreen, Catherine

Comparative data and members’ surveys Philippe, Monika, Cora, Mary Anne, Doreen

Anne indicated that the collaboration with UICC and the conference in 2006 were the most important projects during her 3-year term.

5.0 Discussion with Nancy Lins, ACS delegate to UICC
Nancy Lins of the American Cancer Society and a delegate to UICC, joined the meeting to present UICC strategic plans and discuss how ICISG might play a greater role. She gave an overview of the UICC structure, governance and membership groups.

Catherine noted the recently signed MOU between ICISG and the UICC, and explained that the collaboration would focus on:

• Needs assessment for organization for start a CIS
• Development of a web-based “how to” manual
• Participation in track #4 planning committee for UICC 2006 conference
• Scholarships

The discussion touched on the possibility of seed grant to help support those initiatives. Nancy Lins encouraged ICISG to continue their efforts and suggested that we contact Janice Blondeau, UICC communications director to introduce ICISG. Catherine agreed to contact Janice Blondeau.

While Anne attended the track #4 planning committee meeting, Doreen led a discussion on burn out issues for nurse practitioners.

6.0 UICC 2006
Anne gave an overview of the 3 day track #4 program and the responsibilities for ICISG.

Each board member was assigned to a small group to identify objectives, key points and potential speakers for the ICISG presentations. The group mapped the program and presentations as follows:

Conference: UICC World Cancer Congress 2006
Location: Washington, DC
Date: July 9-11, 2006
Theme: Bridging The Gap: Transforming Knowledge Into Action
Attendance: 5,000-10,000 participants

There are 5 tracks/themes:

1. Cancer research, diagnosis and treatment
2. Public health, prevention and education
3. Patient support
4. Building capacity (includes ICISG)
5. Tobacco control

Program structure for each day:

8:30 General plenary (developed by Program Steering Committee)
9:45 Break
10:15 Track plenary
12:00 Lunch, exhibit, networking
1:30 Concurrent sessions (symposia, panels)
3:00 Break
3:30 Concurrent sessions (workshops, free paper, master class)
5:00 Adjourn

ICISG program:
Saturday July 8 : Pre-conference course – How to start a CIS
One day workshop for 25 participants organized by ICISG Faculty.
The workshop will be based on the How To web-based manual developed by ICISG in collaboration with UICC. Lead: Marion Morra, Mary Anne Bright

Sunday July 9: Cancer planning and strategies

Afternoon CIS Workshops:

1) How to start a Cancer Information Service
Key points: for beginners, should include technology
Lead: Marion Morra, Doreen Akkerman, Philippe Mourouga

2) Needs assessment for ongoing development of Cancer Information Service
Key points: evaluation, quality assurance, training
Lead: Monika Preszly, Phillipe Mourouga, Cora Honing

Monday July 10: Mobilizing communities

CIS Plenary:

Cancer information services – Serving the community and your NGO
Speakers: David Hill – Cancer Council, Victoria, Australia;
Flora Yong, National Cancer Centre, Singapore;
third speaker to be determined (Dr. Chin, South Korea??)
Key points: benefits for cancer control, cancer care, CIS around the world
Lead: Marion Morra, Mary Anne Bright, Anne Vézina

CIS Symposia:

1) Broadening the scope of your Cancer Information Service
Key points: collaboration, adding new delivery modes, prevention, marketing
Lead: Chris Thomsen, Catherine Dickens, Cora Honing

2) Cancer Information Service and patients: Is it making a difference?
(combined with track 3)
Key points: patients needs studies, impact as per user survey, testimonials
Lead: Catherine Dickens, Anne Vézina

Tuesday July 11: Organizational development

Afternoon CIS Workshops:

1) Cancer Information Service and physicians: referral and supporting CIS
Key points: research projects, clinical trials, intervention research
Lead: Doreen Akkerman, Marion Morra

2) New technologies in cancer information services
Lead: Philippe Mourouga, Mary Anne Bright (??)

ICISG Annual General Meeting
Visit to NIH/NCI for members

• Other workshop /poster ideas:
• Recruitment and staffing
• Marketing
• Technology
• Evaluation
• Media strategies
• CIS resources
• Patient brochures

Anne informed all present that the abstracts for the invited sessions will be due in September 2005. It was agreed that members would start preparing objectives, key points and suggested speakers for their respective presentations to distribute to the rest of the Board prior to the next conference call February 16, 2006. Anne will send the UICC definitions for plenary, symposia, panels, workshops etc..

Anne will send an email to Jerry Mayburn to confirm the pre-conference course on Saturday July 8, 2006.

7.0 Other business

• Each member will forward their UICC 2004 presentation for posting on the web.
• Anne will inquire re hosting of a quickplace to facilitate exchange on presentations, other Mary Anne will look into hosting at NCI.
• Anne will create a new page on the web to outline ICISG collaboration with UICC.

8.0 Next meeting and adjournment
The next conference call will be held on February 16, 2006 at 8AM (ET). Anne will send possible dates for an in person meeting during the summer to finalize the CIS abstract for UICC 2006.

The meeting was adjourned at 5 PM.

Last Updated: 8 January 2008