Mission

Who we are

Our collaboration with UICC

What we do

President's Reports

Governance

Board of Directors

Working Groups

Minutes of Meeting/Conference calls

INTERNATIONAL CANCER INFORMATION SERVICES GROUP

Conference Call
February 16, 2005 8:00-9:15 AM (EST)

Present:

Doreen Akkerman Doreen.Akkerman@cancervic.org.au
Ingrid Aubrey aubryi@ligue-cancer.net
Mary Anne Bright brightma@mail.nih.gov
Catherine Dickens Cdickens@macmillan.org.uk
Cora Honing voorlichting@kankerbestrijding.nl
Monika Preszly m.preszly@dkfz.de
Chris Thomsen thomsenc@mail.nih.gov
Anne Vézina (Chair) avezina@cancer.ca

Regrets:

Marion Morra morram@earthlink.net
Philippe Mourouga mourougap@ligue-cancer.net

Attachments: AGM minutes, Board of Directors Minutes, UICC-ICISG 2006 preliminary program

1. Opening remarks/Approval of minutes

Anne welcomed everyone and introduced the agenda. Minutes of the Annual General Meeting of ICISG Members, November 18, 2004 and the Board of Directors Meeting, November 19th, 2004, held in Dublin Ireland were approved as distributed.

• Minutes will be sent to member by list-serv and will be posted on ICISG website.

2. Outstanding items

• Monika will forward her UICC 2004 presentation to Irene for posting on the web.
• Mary Anne will advise if NCI can host a Quick place to facilitate exchange of presentations.
• Catherine will forward a copy signed MOU between ICISG and UICC Anne.
• Irene will start contacting organizations re membership/buddy system.
• Irene will contact attendees to AGM who are part of member organizations to join list-serv.
• Philippe will compare UICC membership with that of ICISG.

3. Collaboration with UICC – review of MOU actions

How to manual and need assessment:

• Chris, Doreen (by phone), Marion, Mary Anne and Anne will meet in April 19-20 to outline the key points of the “How to manual” and also to develop the needs assessments questionnaire.
• Once completed, they will be forwarded to the ICISG Board for approval before being sent to Isabel Mortara, UICC.
• UICC will disseminate the need assessment questionnaire to members.
• The ICISG will compile the results.

Collaboration/MOU

• Irene will forward the ICISG-UICC collaboration page for the ICISG website to the board for approval.
• Once approved by the board, Anne will forward to Isabel Mortara before being added to ICISG website.
  
  

4. UICC 2006

• Anne gave an overview of the preliminary program to date. Comments were as follows:
• Anne confirmed that the room for pre-conference course on July 8, 2006 was reserved – full day – 25-person limit.
• ICISG board members will be available for Q&A at the pre-conference workshop.
• Cora/Ingrid will discuss with Philippe “Broadening the scope of your CIS”.
• It was suggested that a financial costs/economics section would be added to “How to start a CIS”
• For CIS and patients it was suggested that the board look at the UK patient needs study along with user surveys of other CIS (where available)
• It was recommended that more time be allowed for questions/discussions for each workshop.
• It was suggested that full members be approached as potential speakers for the 2006 conference. A draft of the program should be put on the list-serv to ask if there was any interest from other organizations in presenting at the 2006 conference.
• Doreen will confirm with Flora Yong as speaker for plenary session.
• Doreen suggested that there could be a potential presenter from South Africa. She will follow-up.
• Anne Vezina will forward the program for the UICC 2006 conference as it becomes available
• Anne confirmed that there would be a conference call on Track 4 on February 23 and an in-person meeting in Toronto April 10-11, 2005.
• Mary-Anne will do a scan of the draft ICISG program for UICC 2006 to check for overlap

5. Other business

• Anne reported on her preliminary discussion with Linda Blunt, International Programs ACS.
• Irene will follow-up with Valentine Andela of Cancer-Africa for further information on her application for associate membership in ICISG and a description of the organization.
• Catherine will let board know the cost for the meeting rooms in Dublin
• Anne is looking for a copy of Brighton program – if anyone still has a copy, please send
• The in-person meeting is confirmed for July 18-19, 2005 in Toronto with an additional day (July 20) for visit to CIS Centre in Hamilton.
• Anne suggested that the board meet for dinner on the evening of July 17. Irene has a block of rooms on hold. Please let her know your accommodation needs.

6: Next conference call

May 18th 2005 at (8AM EST)

Last Updated: 8 January 2008