Clinical Trials: What cancer patients need to know. New Initiative in Italy.

ChrisThomsen, Director, Office of Communications
National Center for Complementary and Alternative Medicine, NIH

International Cancer Information Service: A Worldwide Resource

Doreen Akkerman, Mary Anne Bright, Catherine Dickens. David Hill, Michael Jefford, Marion Morra, ChrisThomsen, Anne Vézina.

Key elements of a successful CIS:
1) Recruiting and training of qualified staff

2) Finding reliable resources of information

3) On-going quality assurance and collecting inquiry data

4) Collaboration with other relevant organisations and promoting your CIS

5) Development of a National Public Educational Facility for Preventing Cancer: Progress, Problems and Lessons Learnt

(PowerPoint presentation, UICC Conference, Washington, DC, 2006)

Cora Honing, Director of Prevention and Patient Support, Dutch Cancer Society
Ingrid Aubry, Manager Cancer Awareness System,
French National Cancer Institute
Monika Preszly, Manager, Cancer Information Service, German Cancer Research Center
Flora Yong, Senior Nurse Manager, Cancer Education & Information Service
National Cancer Centre Singapore

Physicians and CIS working together: extending into the Community

(PowerPoint presentation, UICC Conference, Washington, DC, 2006)

Catherine Dickens,LondonUK.
Antonia Dawson, MacMillian Cancer Support, London, UK

Les clés de la réussite pour un service d’information sur le cancer

(PowerPoint presentation, UICC Conference, Washington, DC, 2006)

Robert Desmarais, Directeur, Information et Soutien Société canadienne du cancer
Ingrid Aubry, Responsable du programme de veille, Institut national du cancer, France
Anne Vézina, Directrice nationale Services d’ Information Société canadienne du cancer

Cancer Information Services Serving the Community and your NGO

(PowerPoint presentation, Plenary presentation from UICC Conference, Washington DC, 2006)

David J. Hill, Director, Cancer Council Victoria, Australia
Anne Vezina, President International CIS Group, Director, Information Services, Canadian Cancer Society

Provision of information for cancer patients: an appraisal and review

(PDF - 85Kb. Opens in new window)

C. Smith, Information & Support Services Manager, MacMillan Cancer Relief, London UK.
C. Dickens, Head of information Services, MacMillan Cancer Relief, London UK.
S. Edwards, Information & Support Services Manager, MacMillan Canada Relief, London, UK.

Bridging the information and support gap: evaluation of hospital-based cancer support nurse based service

(PDF - 1.2Mb. Opens in new window)

Assessing Need: Cancer Information Service

(Presentation, UICC Conference, Dublin 2004)

D. Akkerman, Director, Cancer Information and Support Service, Anti-Cancer Council of Victoria, Marion Morra, President, Morra Communications, Anne Vézina, Director, Cancer Information, Canadian Cancer Society

International Cancer Information Services: Results from three national user surveys of cancer information services in the Untied State, Canada and Germany

(Presentation, UICC Conference, Dublin 2004)

Mary Anne Bright, Associate Director, Office of Cancer Information Service, National Institutes of Health, National Cancer Institute (NCI),

Macmillian Cancer Relief Mobile Cancer Information Service

(Presentation, UICC Conference, Dublin 2004)

Catherine Dickens, Head of Information Services, Macmillan Cancer Relief

Referral for information & support as part of routine cancer management

(PowerPoint Presentation, UICC Conference, Dublin 2004)

D. Hill, P. Livingston, V. White, D. Akkerman, Cancer Council, Victoria

Supervising and supporting your Cancer Information Services staff

(Presentation, UICC Conference, Dublin 2004)

D. Akkerman, Director, Cancer Information and Support Service, Anti-Cancer Council of Victoria

Using short survey to evaluate customer satisfactions: Email and telephone
(Click for Abstract)

(Workshop Presentation, UICC Conference, Dublin 2004)

Chris Thomsen, Director, Office of Communications and Public Liaison, National Center for Complementary and Alternative Medicine, National Institutes of Health, Bethesda, Maryland, USA.

Collaboration adds value: The experience of the Cancer Information and Support Service, The Cancer Society of New Zealand, Wellington Division.

Julie Holt, Cancer Information Nurse, Cancer Information and Support Service, Cancer Society of New Zealand, Wellington Division, New Zealand

Sexuality and Breast Cancer- Addressing the taboo subject

D. Akkerman, Director, A. Hordern, R.N., B.N., Grad. Dip., M.Ed., MRCNA ;Cancer Information and Support Service, Anti-Cancer Council of Victoria, Australia

Improving services for women with breast cancer by establishing the role of breast care nurse in Australia through a tertiary based distance education program

Amanda Hordern, R.N., B.N., Grad. Dip. Ed., M. Ed., MRCNA., Doreen Akkerman, Director, Cancer Information and Support Service; Anti-Cancer Council of Victoria, 1 Rathdowne St, Carlton, Victoria 3053, Australia

Measuring the performance of telephone information services - A literature review (PDF)

Integrating technology with the human touch through Dialogue - The Canadian Cancer Society's Cancer Information Service

Donna Czukar and Anne Vézina, Canadian Cancer Society

Using the model of a high performing organization to evaluate and plan a quality program

Chris Thomsen, National Cancer Institute, USA

Using Instant Messaging

Thomsen CA, Stengle WA, Worrell MA. Ballard D